Kill Kuato

Thursday, December 21, 9:04 PM – marco: Hair is growing over scar.

looks like I have a pornographic image behind my ear.

Drove again today to send SBI and the Brotman nurses a Christmas card and some fotos. Stopped by work to do a prog note.

Angry I cant find in any rental store disc 6 of season 2 LOST.

The last episode we saw was when Michael came back from the other side of the island looking for WALT, saw “the others”-then Shoots everyone in the end, Ana Lucia, that fat dudes girlfriend, then himself.

We think it was a manchurian candidate type brainwash the leaders of the dharma project sprang on him.
Lots of subliminal stuff in that film.
Ecko viewing the “cerebrus” smoke cloud, is full of one frame images, we used DVD pause to catch them-very cool stuff.
HEaring is a pain. I cant really understand all in a conversation, but nod and pretend I do.
Matt wrote back an email stating The Doc, indeed, will be speaking at the 5th international AN conference in Barcelona Spain-and may use me as a case study.

http://www.acousticneuroma2007.com/ link gone 8(

Monday, December 18, 7:00 PM – marco

Drove for first time out of necessity due to my wow selling *) and having to get it to UPS -the buyer.

Motor facial nerves slowly coming back. Trigeminal slowly.
I used to not be able to “pucker up” my lips, the upper left one laid flat like Mick jigger squid lips. I still cannot blow up a balloon or swish water in my mouth wo it falling out.

am able to go a day wo eye drops.
still walk with caution. no running. no way. I’d fall down.

Saturday, December 16, 11:29 PM – marco

first sign of tear ducts on left during yawn, slowly coming back, eye does not feel irritated as before. reflex blink coming faster on left ex AN side

burning through season 2 of LOST on dvd rental.

Mr.Ecko past Hx in Nigeria episode the best so far.

Friday, December 15, 6:38 PM – marco

well well well
what do we have here
I see I see I see

Visitied my ENT expecting to get my staples out every other one starting from the bottom, and the opportunity to educate explain about this groundbreaking endo work of tumor removal…

He curtly stated he was just there to say that he was not going to take my staples out, he was not familiar with this procedure, and was not comfortable treating me due to the CSF leakage I mentioned that had stopped 5 days ago..he further stated that he thought I was going to see Mangham top traditional approach at Seattle ear-with whom he has plenty of rapport.

So in Essence, I was told that he didnt know that the guy who did the resection was a neurosurgeon-and that if so-I should see a neurosurgeon for follow up..

so….he referred me back to my PCP

I get to my PCP-he gladly takes out every other stitch then has a sit down w me explaining that the ENT nor the Neurosurgeon in town wants to see me due to them bo knowing about the procedure-not having any paperwork-and that Its just me, him, and skull base institute from afar-+ he mentioned that the neurosurgeon probably will not get paid for anything since Shahinian is doing the work from afar med management etc and that he does not want to get involved with another surgeons TURF, especially if he is not familiar with the approach.

So I call MATT up and he says, thats normal dont worry, I told him that I didnt know I was at extreme risk for meningitis at the time, but he (AND my PCP ) mentioned the CIPRO would be fighting that anyway…

So basically it comes down to me choosing my own path of treatment, ( less invasive, less barbaric etc)–and not having a whole lot of after care-but I am recovering ok and SBI has been on the ball from afar at least.

I think I will probably have to follow up with them in 3 mos and fly back down AGAIN.

Matt said the weak left eye shut, facial muscles will eventually come back–how many ANERs here visiting-how long did it take for tearing to come back? and was your motor skills weak from the start? I get the impression, the bigger the tumor, the more swelling post op the nerve goes through..GOing2 LA, states she is almost back to normal–smaller tumor perhaps?

I shouldnt feel too bad, last night a windstorm came through and knocked a neighbors tree over, it landed on their car n smashed their roof in.

I lasted 2 hrs at costco and was able to see a client for 1.2 hrs by then I was exhausted and am home now.

For those of you that are interested in why ENDO may be the future but for now, it goes against the establishment please SEE HERE.

thanks to a forum support person for above link

Friday, December 15, 9:14 AM – marco

went to employee dinner last night.

I went out in the snow to knock snow of some of our tree bushes that were being bent over with weight. I managed ok w/o falling over.

So today I see ENT in 2 hrs. I get on the phone w SBI and Katie tells me, oh I just sent out the xrays yesterday here is the fedex number. Should be there by 10-an hr before your ENT apt.

She further xplained that Matt did give her the xrays to mail, but that the Doc was still using them for a book he is writing.

I asked about my eye and what kind of drops I should get. She said he would give the ino to Matt.

Hope xrays get here in 45 mins.
Plus, ive always heard that fedex is better than ups.

I hope my ENT takes the time to learn about endo. I have my vid of the resection and basic approach shahinian uses.

my wow account is up to 125 on ebay, and ive had peeps offer 400 already for it. im not sure wether to wait or just take the 400